Event Description
CYFIP2 Network is hosting a virtual running challenge on October 15th, 2024 to fund research efforts aimed at testing potential treatments for CYFIP2 Early Infantile Epileptic Encephalopathy. We are fundraising to help support research efforts to test potential treatments via mice, before starting a human clinical trial. Mice are often used in medical research studies due to their genes functioning in a similar way to humans. Conducting treatment studies in mice also allows researchers to track how a disease starts and progresses, and whether or not a treatment would be effective. Our fundraising goal is $50,000: our partner laboratory cost for the mouse model to test the identified medications in the recent study published from Brazil: https://www.mdpi.com/2227-9059/12/3/479
Join the Race for a Cure: Support CYFIP2 EIEE Research
Welcome to our virtual race event dedicated to advancing research for CYFIP2-related Early Infantile Epileptic Encephalopathy (EIEE). Your participation in this unique race will help us push the boundaries of science and bring us closer to effective treatments for this rare and challenging condition.
CYFIP2 EIEE is a severe form of epilepsy that affects infants, often leading to significant developmental and neurological challenges. Research into CYFIP2 EIEE is crucial for understanding its underlying mechanisms and developing targeted therapies. By signing up for our virtual race, you're not just running for a finish line; you're running for hope, for progress, and for every child and family impacted by this condition.
The beauty of a virtual race is that you can participate from anywhere in the world, at your own pace, and on your own schedule. Whether you choose to walk, jog, or run, your efforts will contribute directly to funding groundbreaking research and supporting those affected by CYFIP2 EIEE. Your registration fee and fundraising efforts will go directly to research initiatives aimed at finding a cure and improving the quality of life for individuals living with this condition.
Join us in making a difference. Every step you take, every mile you complete, is a stride toward a brighter future for children and families battling CYFIP2 EIEE. Together, let's run for a cure and show our support for a cause that matters deeply. Sign up today and be a part of this vital journey toward hope and healing.
We are running 2.8 miles for 28 identified children worldwide who show their strength everyday living with CYFIP2 EIEE.
Top male/female runners will be awarded one of our "Limited Edition Genes" Tee Shirts in their respected age groups:
10-19 years old, 20-29 years old, 30-39 years old, 40-49 years old, 50-59 years old, 60-69 years old, 70+ years old
